Showing posts with label Grief. Show all posts
Showing posts with label Grief. Show all posts

Sunday, August 11, 2024

In Sympathy for the Passing of Your Estranged Father


My father is dead. 

I spend some time before he dies participating in a modern-day vigil. My sister texts me that our father is on hospice. At frequent intervals, she sends me stats. Oxygen saturation, IV’s unhooked, a sleep state he may not come out of. This goes on for a few days. 

True to an inheritance that is fraught with alliances, broken alliances, factions within factions, egregious boundary violations, a first family, a second family, and a history so pockmarked that it is worthy of a limited series on any streaming service, my sister and I assume our usual positions. There is a primary connection to our father who she will speak to but I will not. My sister feeds me information. 

The primary source to our father is with him all the time. A small number of visitors come by to see him. My sister reports back to me. 

We discuss how relatively few people come to the bedside. Our father is old and many in his circle have died. 

Our father has also burned bridges recently with several family members who, if this happened a few years ago, would likely be at the bedside, but since nothing got mended, they stay away. 

Then there are those who would never be at the bedside because he burned the bridges a very long time ago. 

There are those who would not go to the bedside because the primary source to my father is there and, like me, they choose to not have contact with this person. 

I am the holder of memory, the decoder, the person filling in the blanks of our shared past. My sister sends me photos of our father. I lend context. That’s him during the Cuban missile crisis. That’s his best friend Frankie. People who my sister thinks are blood relatives are not. People she’s never heard of are. I call myself a repository and my sister laughs, but it’s true. I do not want to use my ability - my gift -  to keep years and years of genealogical shit straight to make a family tree. But ask me anything and I’m happy to tell you. 

I have Covid. I work at an in-person job. HR from my company sends over the latest Department of Health guidelines. The protocols now are so loosey-goosey that I realize on Sunday that I meet the full criteria to return to work on Monday. I also know that any more days off could mean not getting paid, as I’ve already used up most of my PTO. I mask up, go to work, and remain masked up for five days.  

I stay the course at work throughout the text vigil my sister and I are carrying on. When my father dies on Thursday morning I go in. I go in the Friday after he dies. I tell no one at my job what happened. I know what they would say, out of kindness, but I don’t want to hear any of it. 

I am a person wandering through my days without a blueprint.

The world doesn’t stop because I am having a text vigil with my sister or in deference to my father dying. As luck would have it, life decided to deal me a shitshow, along with, as children’s book author Judith Viorst so aptly put it, one Terrible, Horrible, No Good, Very Bad Day.

But I go to work anyway. I also watch myself go to work. I think about the girl I was. The grown version of me goes to work and takes the girl along. 

A girl whose father leaves her family on her first day of kindergarten might not find it necessary to take time off from work as he sickens, then dies. 

 When the girl is fourteen years old and scheduled for every other week visitation with the father - visitations that, in retrospect, probably should have been held with a social worker present - he doesn’t show up. He has what was then called a nervous breakdown, moves across the country, tells no one, and goes missing for years. It turns out that the girl never sees the father again. 

If the fourteen-year-old girl goes about her business as usual, albeit with trust issues and confusion around attachment - then the grown-up version would logically do the same.

The father surfaces again, wanting to see the girl. He is unable to abide by the most basic boundaries she has for him and is so devoid of empathy that the girl ultimately refuses his proposals for any kind of relationship. 

That girl’s refusal sends the now more than grown woman into her place of employment.

A girl who is estranged from her father does not tell her colleagues what happened because their condolences and offers of accommodations would be for a girl with a regular dad, not a girl with this dad. She does not have the bandwidth to tell them the nuances of the situation. 

So the girl goes to work. What she does have the bandwidth to do is work hard. She works hard in a way that is reminiscent of her mother and grandmother. She works hard despite the bits of fatigue she still holds from Covid. Her work ethic remains untouched by the vigil and death of a man who had a great deal of trouble getting up in time for work or holding a job. Her matrilineal inheritance assures that she not only goes to work but also sees the irony in the situation. 

I don’t know what to say, my father’s sister, my aunt, who is also estranged from my father, says. She DMs me on Instagram.

The girl struggles to put words to what has happened. It has no container. There is nothing that Hallmark makes that can speak to this, no collective vocabulary. 

But then it happens. The girl hits upon a simple phrase. The girl I watch grow up with a deadbeat dad is nothing if not resourceful. That girl takes care of business. Now the girl’s phrase is mine.

I’m sorry about the death of your estranged father. 

If you read this and you know me, say these words. Extend them to me. I’m sorry about the death of your estranged father. 

Loss that has no home now has some words. There are no euphemisms, no pretty turn of phrase. There’s no mincing these words either. 

I am little and my father takes me to Green Lakes State Park. There are parts of the lake hundreds of feet deep. The water is so clear you can see all the way to the bottom. All my murky, mixed-up feelings give way to the crystalline depth of that lake. My estranged father died. I am sorry that my estranged father died.

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Monday, December 21, 2020

Unsanitary

Once our son’s pediatric oncology nurse teaches us how to wash our hands, we will never again use the melted and misshapen bar of soap in the clammy puddle of cloudy water. We will cringe at the sight of the limp, damp, terry cloth hand towel provided in other people’s bathrooms. 

Our child died. It wasn’t from opportunistic infections or carelessness. It was from cancer. All of the germ fighting things we did for him so that he could sustain the strong treatments we hoped would save his life remain with me. There were times when he had zero white blood cells. He still died but at least we controlled the things we could. His death is 100 percent, but my regrets around him are zero. 

So when a pandemic hits, it’s like riding a bike.

While other people are still moving in slow motion, I leave my old life behind without looking back. Everyone is immunocompromised when it comes to COVID-19. The implications are massive and unwieldy.

Soon my hands develop eczema from all of the washing. This too, is familiar. I take the recommendations of epidemiologists and  then embellish them all  for good measure. My doorknobs gleam. 

I don’t game the rules, finding a little loophole here or there. 

Before my child developed pediatric cancer, I was just like the rest of you. I call other parents, unscarred by chemotherapy regimens or pint-sized caskets, civilians. 

Civilians live in a place I can observe but not access. You do not have flashbacks of the moment your child died. You do not have what psychologists call intrusive thoughts that come uninvited, superimpose that death onto surviving family members in crystal-clear details that can only be described as hyperrealism.

Make no mistake. I have no desire to edify or initiate you. I don’t want you wearing my shoes or walking in them. I want you cosseted in innocence because the alternative is just too tragic.

But this pandemic is a beast of unnatural proportions. Would it hurt you to be a little more careful, watchful, aware? Of the children you’ve been gifted? Or, while you are at it, yourselves? 

From the archives:

Sunday, May 12, 2019

Mammalia


There’s a tingling in the space between me and not me.
I’m aware of being an animal.

Are you walking these streets?
The hairs on my arms stand up to reach you before the rest of me.

Is it the wind? Or your breath on the back of my neck?
Its useless to ask.
So I question nothing anymore.

Whatever it is.
You are that potent.
One of these things is true.
There is no wrong answer for this.


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Sunday, July 17, 2016

I'm not going anywhere


I made sure to look decent whenever I went over to see him. It was a dire situation. He didn't need me showing up there looking like hell warmed over. Besides, I didn't want him to know how worried I was.

I'd gone over for several days in a row. It was decided that I should take a day off. A friend of mine suggested it. I ran with it.

So the next day I woke up with the knowledge that I was not going to leave the house. I wasn't going over to his house or anyone else's. I had no appointments. I wasn't expected at either of my kids' schools. The farthest I'd be walking would be to the laundry room.

The thing I remember most  about that day was getting dressed. The clothes selected themselves.

I put on my Camp Sunshine sweatpants. The elastic was shot, but they still stayed up. The Camp Sunshine logo was almost worn away. It looked like peeling paint.

I topped it off with a long sleeved, ultramarine blue tee shirt. The design looks slightly Buddhist. It's fancy font invites you to Imagine A World Without Cancer.

It turns out the shirt, acquired on account of being a Cancer mom, and unfortunately, also a bereaved mom, was  somewhat applicable to my current predicament. Because of fucking cancer.

The pants too, but less directly.

Finally, I rounded off my statement with thick green socks with treads at the bottoms. These are hospital socks. They gave them to me at the UrgentCare center when I broke my ankle. They stretched one over my splinted foot to prepare for my trip home. I put the other one in my bag.

The best thing about the clothes and socks were their comfort. I was clearly engaging in what lifestyle blogs call extreme self care. Not facial masks, cleanses or a spa. My version of it.

The second best thing about the three elements were that they are all on a list of items that I am only allowed to wear around the house. I used to wear these things out in public. Since that time, I have raised my standards considerably.

It was appealing to wear a tee shirt at home that I could never wear to visit him. He could no longer imagine a world without cancer. It would be pointless to try. It would be a terrible idea to wear it in front of him. Besides, as I've indicated earlier, it isn't even flattering.

But I was free to imagine a world without cancer in my own home.

I luxuriated in looking bad but feeling good. Sometimes I caught sight of myself in a mirror. The worse I looked the better I liked it.

I don't remember much else about that day. It was not a watershed day in terms of accomplishment. I have some positive memories about it, even as the details blur.

Right after that, things took a terrible turn. There were emergency trips to see him. There were emergency phone calls to help him.

Laundry was the last thing on my mind. One of the last times I went, but not the very last time, I broke down and wore the Camp Sunshine pants. Most of my other clothes were dirty.

Another friend was there visiting with me. Sweatpants, he said. It was without judgement. It was a statement of fact. For him, this was an unexpected development. Yes, I said.

When I bought the Camp Sunshine pants, I believed that I would never throw them out. But not long after he died, I brought them to fabric recycling. They developed holes. They no longer stayed up. I was okay with it. Especially under the circumstances.

I'm not ready to write much about him yet. I'm not even prepared to write about his clothes. Writing about my own clothes is about the best I can do.



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Thursday, July 7, 2016

You are not okay.


It was going along.
You were keeping apace.
It was in English.
It was in your province.

In one sharp second.
Words become odd numbers.
A jumble, betwixt, afoul.
You're so far afield
You can't understand what you can't understand.

Drowning doesn't look like drowning.
The lapping calm, whimpering waters.
There's no gasp, no flail, no fanfare.
That is what they say, and you believe them now.
After today, you'd believe anything.

So what that something isn't right?
It's not just a tangle or amiss.
Every last morsel is  wrong.
To fashion a query.
Would take another brain.
One that was still tethered.
One born brighter ablaze.

Look normal.
You say this to you.
That which is light as air, that which is familiar old clothes.
And it works - for a while.

Is it the shame of the words?
Or that of not understanding?
Is it something else?
That makes your skin itch and crawl.
That flits around you, buzzy old fly.
Lazy and large, persistent and dumb.
Useless but living.

You should have stopped the bus!
Old with rust the clanging mess of ricket and metal.
Barreling down, reckless  and sure.
But it's so late that there's no use checking the time.

You are with just you.
Addled and splintered such as you are
There's nobody left to ask, nobody to decode.

You summon your pieces.
Buttressed, still tall.
You remember a thread of competence so bold.
That technicolor isn't nearly enough of a word.
You want to fix this.
But even this version of you can't make it so.




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Monday, May 16, 2016

This Shit Got Real

You're sitting on the floor packing personal effects. You arrived early and let the place really hit you. It's nobody's home anymore. Every time you come it's a little less welcoming.

You're using paper and bubble wrap to pack every delicate and fragile thing this man had.  You make cushions at the bottom of the boxes with the materials  that you carried here last time. You're careful because you need to get this done today. You don't want to run out of resources.

You want to cry. But you're afraid once you get started you won't be able to modulate that activity. Like you said before, you need to get the job done. You said you were going to and you keep your word.

If you get all emotional then there are consequences for that. The other friend, the one plowing through different personal effects in the other room, would be uncomfortable. Then again, he seems pretty settled in there. You might be able to get away with a few tears without him even knowing.

If you just soldier on and procrastinate your feelings you'll be purposeful and sharp. But you worry about what will happen later, after you leave. You haven't been sleeping much. You've amassed a debt and it has to go somewhere. Three o'clock in the morning is where it's been going.

You admire the other friend, but you are not him. You'd like to stay you, only that person is a bit fuzzy right now. 

You're good with the packing and wrapping and sealing and labeling. You feel your competence with that. 

But you still get all self-critical and snippy. You don't know what you're doing. You can't fall apart here but you don't want to pay the piper later either.

You remember this. You're not supposed to know what you're doing. You've been winging it all along, even at the beginning when you thought you knew what to do but then found out later you'd be flying by the seat of your pants.

No one has taken you in hand. No one has mentored or schooled you in how to do this. You're doing the best you can. Same with the guy in the other room.

You're softer now. You're going to have to accommodate you. You stay in this nether world. You're not a robot but you're not letting the crying be the boss either.

After three boxes you take a break. This man's people are emailing you. You're aware that you are not a bottomless well of empathy and good will. You've dug deep with these people and just for today, they're getting a little less of you. You've got no patience for any one sided crap this morning.

You send out serviceable communication. You try it on for size. You like it.

You spend more time and more adjectives on the cousin. She's feeding you a little bit with her turn of phrase, her sparkling way with words. You smile and write something short yet pretty. She responds in kind.

You parcel you out in smaller pieces leaving little bits left over. The little bits amass. You get your job done. You did what you said you would and then some. 

The other friend chooses something made of glass and you pack it  for him. Your hands are  confident from a day of this. You've wanted to help him somehow and you just found your niche.

The shit's real but you're okay. For the first time since this all began, including the days at the beginning when you thought it would all work out, you shake a little of it off when you leave. 

You exit the train. There's a young orthodox Jewish couple who have moved to your neighborhood. They're walking together pushing a baby in a carriage. 

You feel like they are renegades because they settled in Inwood, and not Riverdale, Crown Heights or Monsey. They are devout but willing to mix. People who are complicated and seemingly contradictory fascinate you. Same with people who make their own rules.

You love the couple immediately then realize you're being silly and reign yourself in. One of your long-time neighbors has noticed the baby and is exclaiming and cooing at her. In spite of her relative immodesty, the couple is friendly and engaging with the the not-Jewish neighbor.

You get closer and now it's your turn  to have a look. Your dress hits below the knee, but your arms are exposed. No matter. You and the other neighbor are collaborating now. Look at those eyes! That smile! The baby looks from one of you to the other. 

Light, lilting and merry, you remember the fun part of your repertoire, and it doesn't need to be orchestrated by you. You are not responsible for everything. You allow yourself to get swept up and to fall in love with the baby and maybe even the rest of the day.

Congratulations, you say out loud to the couple and then silently to yourself. You walk down your block toward your building and your apartment. The evening stretches out, wide and possible. Even better, it belongs to you.

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Friday, May 13, 2016

Check Back With Me Later.


You ask - I ask myself.
I can't answer.
Jesus Christ! I wish I knew.
It's not steady ground, so don't ask again. 
The plans I make are small.
I'll look back on this.
That I know from what's happened before.
It's a story that gets told backwards.
There's nothing to share now.
It's too damned soon.

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Thursday, April 14, 2016

Emotional Support From The Security Guard


I like to go to this running track in my neighborhood. Right before you go in the gate you see this man who sits in a booth. He isn't just any man. He's the security guard.

He waves me in. I always say hello, goodbye and thank you. I am trying to be on friendly terms with this security guard. One reason for this is that I am a very nice person.

I do have some other motivations which are self serving but generally harmless.

If possible I would like to become allies with this security guard. I'm hoping that if he sees me enough he'll wave me in anyway, even when the track is closed for stupid reasons. 

Some of these stupid reasons include a tiny bit of ice or snow on a small sections of the track, an unscheduled Columbia sporting practice where there is still plenty of room for me, or unknown random events that are not visible to the naked eye.

I feel like it's going pretty well.

I like to imagine the security guard, sitting in the booth and maybe glancing up from his phone to notice the recovery process unfolding from my broken ankle. When I first started using this track, I walked very slowly until my ankle hurt, then walked even more slowly. Then I started to slow jog a bit. Now I'm jogging more and more. 

I haven't been expecting anything but once or twice he gave me a thumbs up.

Today he waved me in.

I did my usual routine. My physical therapist has taught me all about alignment. She's also trained me to be aware of my entire foot surface. Going to the track and exercising is almost like a walking mediation. That's how good it is.

I did some cardio for 30 minutes. I was almost to the gate when I stopped and took some photographs. The sky was very opaque, which made for some interesting relationships with the bleachers, the trees, and the light. 

As I'm exiting the gate the guard stops me. 

Why aren't you smiling today? He asks. His friend is there with him, hanging outside the booth. What's up? the friend asks.

I've had a hard weekend I said to them. But going to the track helped a little bit, I added.

What were you taking pictures of? The security guard asks. Yeah, said the friend. We were wondering.

When they said pictures it came out sounding more like pitchers.

Oh, I'm an artist, I said. I take some pretty weird pictures. The friend nodded, yeah, I like doing that too, he said. I like taking weird pictures.

So as I'm getting ready to go the security guard gets pretty direct with me. Next time I see you I want you to be smiling, he said.

So I said okay and walked off, when I was a few feet away I gave a little wave. This exchange put a spring in my step on the way home.

I have friends who know where I was yesterday and what I was doing. I'm not mad at them for not checking in. Until I went to the track, I hadn't really thought about it.

The security guard knew something was up. That was a breath of fresh air. You never know where your support is going to come from or who your friends may turn out to be.

A few minutes later, I came to a new conclusion about the security guard. If the track is closed, the track is closed. I'm not going to ask him for special treatment. That's not what friends do or what friends are for.

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Saturday, March 26, 2016

What I know, what I don't know


It’s a shift.

I know without a doubt. This corridor is narrow.  It’s unmistakable.

There's no argue, no negotiate. You don't work it out with what is. 

After a time, a minute, maybe an hour, there's a small bit of wiggle room. 

I realize I know what. What is what I've been talking about.

What I don't know is where and most importantly when. 

Knowing what I don't know makes it sort of okay.



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Thursday, July 2, 2015

I Will Say The Wrong Thing


I've been a member of a lot of support groups. Support groups for cancer moms. Support groups for grieving moms. Some have been on the phone. Some have been in person, with people sitting in chairs, arranged in a circle. Some have been email groups. I've never done the chat room.

These are the kind of groups I have done. Perhaps you have participated in groups yourself. If you've been to Weight Watchers meetings, then that is a support group. Same with AA meetings. There are message boards for people in treatment for almost every disease process.

The reason you are in this group, with other people with a similar profile is that you need some kind of support you are not getting from your day-to-day life.  At least some of these people get you. Like it or not, they might be the only ones who do.

Every support group is different. But here is a common thread I've noticed among all of them.

There will be a point at the meeting when someone - you or another group member - tell a terrible story about someone in your personal life who said or did the wrong thing. You can pretty much count on some or all of the people present to commiserate with you. Sometimes the social worker or therapist facilitating the group will be quiet and listen to what all of the participants have to say. Other times, if the wrong thing is bad enough, they will join in the commiserating.

If you are telling such a story, chances are, as unique as the situation feels to you, someone else will pipe in that their boss, mother in law or crazy neighbor said the same thing. You feel sorry for this other person. But it's good to be understood.

There was one time when Jeremy and I told a story about someone saying a wrong thing that no one else in the group had heard. The group members were silenced for several minutes. People just stared. Even the people who never stop talking stopped talking. After a bit, they shook their heads.

It is important to have a safe place to vent. It is important to feel validated.

For a long time, I was too busy telling terrible stories, listening to terrible stories and commiserating with people about their terrible stories  to think about what I am about to say. When I had a little bit of mental bandwidth I thought about it a little. Once I had more bandwidth I thought about it quite a lot.

I will say the wrong thing.

I will be that person who someone brings up in the support group.  No one wants to be that person.

People who haven't been to a lot of support groups might not even think about this. They don't know what goes on in these places.

I've been careful. If someone says they are on a diet and going to Weight Watchers, then I'm not going to bake a chocolate cake, cut myself a big slice and eat it lustily in front of them. I want to be supportive. I don't want to be branded as the food pusher at the Weight Watchers meeting.

It wouldn't occur to me to ever ask an adoptive parent who the "real" mom is, tell a grieving person to snap out of it, assume a woman wearing a diaphanous blouse is pregnant, or pat a man's spare tire. The only reason I know about this is either from witnessing or reading about it.

Then there's the things I think, but don't say. Shouldn't that kid be in bed? I think you're on the Autism Spectrum.

There are lists published daily about what not to say.

Part of what worries me is that there are so many lists of things not to say to new parents, the infertile, the childless by choice, the moms of kids with dyslexia, the moms with dyslexia, the newly retired, the newly religious, prodigies, insomniacs, people with chronic illness, the obese, people who have lost their jobs, people who have lost their pets, the Gluten Intolerant, and people who have many competing multiple issues that there are too many potential bad things to remember. I'm afraid that I might forget something I'm not supposed to say.

To further complicate matters, no two people are alike. Every cancer mom I've ever talked to hated it when people brought up the idea of them having another child. They're insulted that anyone would say such a thing. They feel that there is an implication that the sick child can be replaced with a healthy one.

It turns out that two people gently brought up more children after Jacob was diagnosed. In my case, I wasn't insulted. I didn't think they were asking me to replace Jacob. My feeling was one of support and encouragement. I'm left happy that these two people didn't get the memo. Because for me, they actually said the right thing.

In spite of being careful, I have said the wrong thing. My wrong things seem to fit into three basic categories.

The canary in the coalmine
I'll notice something. I will often be the first to notice something. Other people do not notice or are not ready to notice. They feel I am being ridiculous. I have said the wrong thing. Then weeks, months or years later, they notice the same thing I did some time ago. But when I said it, it was too early. Now I try to wade in more gently. I made this improvement the other day and it worked out. But I'll probably say the wrong thing again. It's not easy being this canary.

Letting the cat out of the bag that I didn't know was in the bag
Sometimes I talk about things that are taboo to other people. I seem to have fewer topics that feel taboo for me. I'm not big on certain kinds of euphemisms. I don't know why people are ashamed or secretive about such things. But I need to remember this and respect them.

So I will inadvertently let something drop that was supposed to be covered up. It isn't a surprise party kind of thing. It isn't something that someone told me in confidence. Its something I was supposed to know not to talk about.

So now if I have something like that to say, I might just have to zip it. Or use a whisper voice.

Giving the wrong advice when the person just wanted to vent
The person will seem to be asking for advice. I give some advice. I give reasons for my advice. Then it turns out that my advice is crappy. I have said the wrong thing.

The next time someone seems to be asking for advice I'll ask them directly if they want advice or if they really just want to vent. If they say they want advice, I might remind them how crappy my advice was the last time.

There are probably people who do not care that they said the wrong thing. I'm not one of them. When I say the canary in the coalmine wrong thing or the cat out of the bag wrong thing I remember it forever. It becomes a hot memory.

Just thinking about being that person in someone's support group gives me the same deeply embarrassed feeling that is hard to live with, even though I won’t be there to witness it.

After a long-suffering time, I decided a different approach was in order.

I've come to accept that in spite of my best efforts and in spite of my awareness of what gets me into the most hot water, I will say the wrong thing. Allowing myself to think about patterns of saying the wrong thing and admitting that saying the wrong thing is something I do took some of the sting out of it.

The next thing is to figure out what to do when I say the wrong thing again.

I've apologized of course. But I'm thinking that maybe asking the other person what else I could do to make them feel better would be good. I might put forth some suggestions.

Sometimes I'll be the one saying the wrong thing. Other times I'll be on the receiving end.

A person I have known for a long time said something to me. Unfortunately, it's playing over and over again in my head like a broken record. I feel unmoored. They have said the wrong thing.

If this were a bereaved parent bad thing, I could take it to a chat room I've been invited to. I could call my very best Camp Sunshine friend.

This particular wrong statement is homeless. I'm not in that kind of support group.  I've thought about joining a support group about this topic. Unfortunately this topic has me so busy that I haven't looked for one, which is ironic.

This wrong thing that someone said needs an audience. I'm thinking if I'm this upset that the support group might need to move from the back burner to the front one. Things that don't bead up and roll off are a message. The message isn't for the person who said the wrong thing. The message is for me.

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